Recently at our unit we have a resident that has a medical condition Huntington’s disease and some of the symptoms of this can lead to rapid weight loss due to involuntary movements and being unable to feed herself
Recently at our unit we have a resident that has a medical condition Huntington’s disease and some of the symptoms of this can lead to rapid weight loss due to involuntary movements and being unable to feed herself , reduced swallowing can have risk of choking, reduced mobility risk of falls so after speaking to the relevant specialist services it was agreed with the resident that her plan of care would be adapted to meet her nutritional needs so this plan gave direct instruction of set times and high calorific value foods of which would be of soft diet and contact was made as a specialized bed bumpers so that she avoided bruising to her limbs. After the meeting it was in her plan of care that all the risks would be monitored, and regular feedback would be passed on the other professionals including the salt team, weight management and moving and handling and she agreed to be weighed each week. During the first 2 weeks it became apparent that the resident was still loosing weight and had become reluctant to eat or drink the choices that were available from the units kitchen so after discussion with her she had indicated that she was not keen on the food and drinks that was provided so we gave alternative such as a company that provided a menu for individual with swallowing difficulties she indicated that she would prefer that staff go to the local supermarket so each week and buy her food items each week staff liaise with her and put together a shopping list to collect from the supermarket and this would be stored in her own fridge freezer in her bedroom then they could ask her each morning after her morning routine what she would like to eat for her meals during the day at the required time staff would cook the chosen meal and blend it so that the right consistency to avoid the individual choking. After weeks of monitoring and ongoing talks with the resident she is now gain a little weight week by week she is accepting all meals that are provided for her and it has been identified that she is only comfortable being supported to eat and her personal care attended to by certain members of staff so after talks with her she requested that no male staff to support with personal care and feeding so the manager and nurses have made all staff aware that when staff allocation are on rotas to be mindful of this. Research was carried out with the consent of the resident and her family member / sister to find and purchase the special bed bumper this is to protect her limbs from getting bruised due to her involuntary movements and the unit provided a profiling bed as she had requested to be nursed in bed due to the deterioration in her health needs.